Monday, July 9, 2012

Another Day in Lock Up

Still in the hospital.  Was supposed to go home today but my white cells weren't cooperating.  Apparently, they aren't going down to the level my doctor wants them to.

The good news is that I'm not on oxygen anymore.  I can't go running, but at least I can brush my teeth without getting short of breath.  And my nose is happy about this change in events.  It was really starting to hurt. Now I'm just irrigating a bunch of blood out.

For the most part today has been pretty uneventful.  My boyfriend and I are having our last date night before he returns home.  I have to say, he's definitely set some new standards for boyfriends.

Saturday, July 7, 2012

Date Night

Well, I have some good news.  I should be able to go home on Monday.  I could have gone home today, but one of the meds won't be available till Monday.  So I have to finish out the weekend here.  I am looking forward to going home.  Sleeping through the night will be so nice.  Here getting two hours of uninterrupted quiet time is a miracle.

I do have to say that this has been one of my better stays.  I am going to have to give my boyfriend credit for that.  Last night he decided that we would still have our date night even though I am in the hospital.  So he dressed up and made me a peanut butter shake.  Then we did dinner and a movie.  It was really sweet.  instead of letting the hospital ruin our plans, he found a way to make our plans go through.

I can honestly say that this stay has been very amusing.

Thursday, July 5, 2012

Lock Up Update

Thought I'd try updating everyone on what's been going on.  I was transferred to UC Davis on Sunday afternoon.  I figured the earliest I would have been transferred was on Monday, but when two hospitals work together instead of arguing, things get done pretty quickly.

So I had my first ambulance ride that I was conscience for.  My boyfriend rode with me.  He rode up front while I was in the back.  I wish I could say the ride was exciting, but it really wasn't. Between Chico and Sacramento is mostly farmland so I dozed the bulk of the way.

Since getting to Davis, I've been pumped full of fluids.  My bladder is not enjoying this.  They've taken plenty of blood. Done X-Rays.  Still no real conclusion as to what happened, just a theory.

My boyfriend has been staying with me.  He's been really helpful through this.  Since I wasn't able to move around, he basically carried me where I wanted to go.  He's good at distracting me during lab draws.  One time, a nurse came in for blood and my boyfriend started talking about food with me.  We were describing different dishes, finally the nurse said, "stop, your making me so hungry I can't concentrate." I got a good laugh from it, and it was one of my easiest lab draws.

I think him being here is probably the only silver lining to being in the hospital.  We usually don't get much time together.  And right now it's in abundance.  I don't think the sleeper chair he's been using is all that comfy, but he isn't complaining.  I do think the lack of good sleep is probably draining on him.

The hospital food is still a mystery to me.  Yesterday, they sent something that they called Chile Verde, but what it looked like was a dog vomited up a bunch of canned food.  Looked pretty nasty.  Now I love Chile Verde and this stuff definitely wasn't Chile Verde.  This time around, I've been craving chicken alfredo.  Can't wait to get home and have some.

As for when I get to go home, there's no say on that.  I think the doctors are waiting for me to be able to do normal things without oxygen before they will consider letting me go.  So that's what I am working on.  It's a challenge since everytime I unhook the oxygen I feel like a fish gasping for air.  My doctor did order a bike be brought in so I get to start on that.

Not much else here.  Mostly trying to catch up on lost sleep.  Sleep in a hospital, what a novel idea.

Sunday, July 1, 2012

The ER and Lock UP

So I did plan to do some blogging about the amazing busy time I've been having, but instead I found myself unable to breathe.  I was having such a hard time that when I called UC Davis the Pulmonologist didn't think I could make it there, so I went to a local Emergency room instead.  So I am in Enloe.  The people so far have been nice which makes the nerve wracking part of being a new place a bit less so.  It looks like I was dehydrated again.  As soon as they pumped some fluids in me, I started having an easier time breathing (with the O2 on).  I still can do a lot of moving around but there is some improvement.  The doctor here spoke with my CF doctor and they both agreed that I would be better treated at UC Davis. So they're trying to get me stablized enough to transfer.  Not sure when that will be.

The silver lining to all this is that Enloe is located close so that my mom can get some rest at the house and my boyfriend can relieve her.  He met us up at the ER and stayed the night here with me.  My mom had worked yesterday and needed to get some rest and care for my niece.

Another good thing about being here is that we have a couple of friends from our Bible study who work here.  They've stop by to say hi.  One of them came just in time. The hospital was getting ready to move me from the ER to a room.  They sent a guy from the lift team to bring me up.  I still had a bunch of EKG stuff connected to me and he was going to remove.  I sitting there thinking, "I don't even let my boyfriend see this part of me and here a complete stranger about to lift my shirt."  Luckily my friend told him no, shooed him to the other side of the room, shut the privacy curtain, and removed all the stuff.  She did this during her lunch break.  I was completely relieved.

So I've survived my first night here.  My boyfriend is trying to catch up on some sleep.  He's been up with all my coughing attacks, and my short of breath moments.

I think being a loved one of a CFer can more exhausting than being a CFer at times.