Monday, May 30, 2011

Friday's Post

Sorry for not posting Friday. Internet was on the fritz. I suppose that means you get two posts this week, weather permitting. Basically whenever the weather gets crazy (snow, rain, wind) I lose internet. The joys of living in the mountains I guess. This weather is not typical for a California May. By now I usually have a nice tan going and have the best swimming spots picked out. With all the rain and cold, I haven't set foot in a body of water yet. And we don't get tornadoes that touch down. Wednesday, four touched down in my county. Luckily, no one was hurt. A lot of property damage but that can be fixed.

Not much news in the CF world. May is Cystic Fibrosis Awareness Month so on weekends various cities have been holding Great Strides events. No miracle drugs on the market yet. Various drugs in the trial stages, but that doesn't mean they'll make on the market. So it's keep your fingers crossed and hope that something pans out.

I still haven't been listed for a transplant. I'm not sure how much worse the transplant center wants me to be before I can be listed.  I go back in July to see if there's any change. This part of waiting is frustrating. I'm too sick to hold a job. My day is spent doing treatments and therapy. Sometimes it feels like I don't have a life.

I have found ways to keep busy. I preview movies for the monthly movie night with my bible study group. I sew, I write. I experiment with cooking. And I read. So at least I'm not sitting around all day feeling sorry for myself. I just get bored sometimes. I think that's the only time I miss living in the city. I enjoy the quiet of the mountains and the fresh air. But since I don't have a car, I can't go anywhere when I'm bored. In the city I can hop on a bus and go somewhere else for a change in scenery.

Maybe I should take up gardening.

Friday, May 20, 2011

I'm Famous!!!!!

Most of my readers know that I don't post a lot of personal information. If it isn't about CF or any of my other blog subjects I don't write about it. A couple of months ago my dad and I agreed to have an article written (to see if there was an audience for a book). I'm not saying that it is taking off like wildfire, but there seems to be some interest in the story. There's even a picture of me and my dad at the bottom. Pretty cool. Guess I should start writing the novel.

Friday, May 13, 2011

So Sorry for Being MIA

The title about sums it up. I was planning on taking a month off during summer time so I could finish school, but things went out of control. There were family issues, hospitalizations, family in the hospital, more hospitalizations, more family issues. It has been one crazy train wreck.

I did manage to finish my degree (picture to come soon). It's the most expensive piece of paper I own.  I am hoping for a calm May so I can catch up on all my blogging. Lots of ideas.

I wish I could say that with my degree came a snazzy job, but as of right now I really can't work. Hospitalizations are occurring each month. When I'm lucky I get two months out of my prison cell.  One would think that I would have plenty of time to write. This seems to be a challenge since no one wants to lug my computer back and forth during my hospital stays. I guess it's a sign that I should get something lighter, unfortunately that requires funds I do not have. I am thinking of just taking pen to paper and typing everything up when I get home.

You will be getting my random thoughts after the fact, but at least I wouldn't be MIA for such a long period of time.  It's just a thought.

To top off all the craziness that's been occurring at home and with my health, I also lead a movie night for unmarried Christians. It's a once a month event. I preview a selected movie and write up discussion questions. Just trying to get people to think about what they watch. I'm all for a good comedy, or action movie, but a lot of movies out there have no real plot to go by. And I still find swearing very trashy.

I have thought about posting the movie titles and questions on here if anyone wants to have his/her own discussion on the topic. I'm just not sure if that's the direction I want this blog to go in. Maybe I'll post it on Book Keeper's Attic. I've been wanting to do a media section on there. Mostly, was planning on ranting and comparing movies to books.

Anyways. I am back. Hopefully for good this time. That way you guys can look forward to my weekly postings about my fight to inhale for a long time to come.